Child's Code: Jing
Birth Date: 6/1/2016
Gender: Female
Description: This child is diagnosed with Epidermolysis bullosa (EB), also known as “butterfly skin”. EB is a group of inherited connective tissue diseases that cause the skin to be very fragile. The skin can be easily injured and will be impacted by painful blisters which can lead to serious problems. PLEASE do your research on this medical condition FIRST and contact CCAI only with very serious inquiries. Thank you!

1 ½ year old Jing is absolutely adored by her nannies! She is usually pretty quiet, but she will express herself with body language and sweet little “ah ah” sounds. She can say simple words like mama and ayi (nanny), too! Jing’s nannies say her overall development is pretty on par with her peers. She can crawl, and she is able to stand and walk with support.

Jing’s physical health is pretty good, but her skin is extremely fragile due to her medical condition. Her nannies pay close attention to her and have to limit some of her activities to prevent damage to her skin. Her hands, feet, and body are usually wrapped in gauze to prevent blisters and scratching, and her nannies carefully apply Vaseline and anti-inflammatory ointment under her wraps.

A doctor who cares for sweet Jing at New Hope shared this with us:
“Her family needs to be prepared for her EB to impact everything. No genetic testing or preparation or risk assessments on their part can get around the fact that in their family there is probably nothing that will not be impacted by her having EB. That being said, she is altogether and entirely worth it.”

Please help Jing find her forever family!
Medical Condition: Epidermolysis Bullosa, Other
Contact Info: waitingchild@ccaifamily.org